Leave of Absence Weblog

May 14, 2008

The Real You

Filed under: Chronic Condition, Myself, Pain Management — leave of absence @ 1:29 am
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I have had a tertiary situation occur in the midst of trying to recovery from the most recent medical condition that greatly hampered any progress.  Okay, being real here. . . I quit.  I did.  I said, ‘forget it.  I can only handle so much physical pain at one time.  I have reached my limit.  Everyone should be happy, as others have said outright that I am not dealing with my diagnosis because I don’t “complain” enough.’  If they could hear me now, they would be very content to know that i have natural boundaries & limits of my pain like all people, and will, when pushed to my own personal limits, complain.  So, I am publicly stating that I am at the limit of what I can tolerate.

The conundrum is how to treat it.  Not as easy as it may seem, as the injuries incurred have a treatment that often conflict with appropriate treatment for my chronic condition.  I cannot remember the last time I drove a vehicle.  I take that back; I can.  The last day I went to work, I drove myself there and home.  I get lost in our moderate-sized community because I am not forced to think through how to get from Point A to Point B.  The first time I got lost while giving directions to a friend visiting, reality began to hit.

So you can perhaps sense the need, perhaps the desperation, to return to a more normal state physically.  Is it possible?  That depends on who you ask.  I am decades from giving up!  However, medication is currently impairing decision-making enough that I would not choose that route.

I have tried all other options in attempts to ease the pain.  Some have increased the pain, some have had a neutral effect, and a few have had minimal but slow improvement.  I am willing to be patient when I consider the options ahead if I accept this as the end.

Most of the medical professionals, as much as I appreciate & respect their views, would choose medication as the first option.  I am not saying it does not have a place in the course of treatment.  However, they are not in my home when it alters my thinking, my mood, my alertness – my role as mother and wife.  I don’t like having part of my personality disappear.  And I don’t seem to adjust to the medication over time. . . no matter how much time I am given. 

So they finally agreed it was time to return to some therapy, along with some additional treatments at therapy that had not been tried.  And?  This afternoon when the pain set in with its usual ‘I want to take a knife and stab myself so there will some physical proof of why I feel like this’ pain. . . I tried the at-home treatments rather than more pain medication.

I am determined to break the cycle.  The cycle of pain.  I am determined to life.  To live life fully, without impairment of medication when other options will work.  Everything in its proper place.  I am determined to be honest.  Someone asked me if I was surely feeling better because I ‘looked so good’.  I answered honestly.  No, but I am working on getting better.  I will be better.  Right now, I am not.

I am determined to be real.  The real me.  And I will be better physically, emotionally, and spiritually when I look back at this time. 

 

May 7, 2008

Fly Like an Eagle

Filed under: Myself, Pain Management — leave of absence @ 8:20 pm
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That is what I can do. . . in my mind.  Ergo, the problem.  I have one good day, and I just go for it.  I have no self-control.  None!  I have lived with this condition for years, yet never have I experienced such a setback as this.  I try to come to terms with the fact that this could be. . . dare I say it?  Permanent?!  I can’t.  It is unthinkable to me.  How does one reconcile themself to a life of where they were working one day, loved their job, enjoyed their coworkers, took trips to the store, driving, getting the mail ~ you name it ~ for granted.  Now, I find my days consist of time on a couch.  And I am content! 

Why would I be content with such a drastic change in my lifestyle?  There are so many reasons.  The most obvious reason is that when I sit with my legs reclined, and engage my mind in activities on the computer, I am  not in pain.  I find that my world centers around keeping myself out of pain. 

I take the necessary medication to maintain as normal a life as possible.  The medication alone renders me unable to have the necessary skills to drive safely.  If anyone had told me a year ago I would be in this position, I believe I would have been stocking up on activities to do.  However, many of my favorite activities involve enough mobility that there is the relapsing PAIN.  So, without realizing it, I find myself favoring activities that I still enjoy that do not make me miserable. . . and miserable to be around.

What an odd life.  I get dressed on the floor of my walk-in closet, and am content with the simplest clothes.  I used to be an utter clothes hound!  Now, it is about function first.  Don’t get me wrong.  I still won’t leave the house without my makeup on.  I may have lost a lot of function, but I’ve not lost my mind!

I can still enjoy doing some landscaping, it just takes creativity and determination.  Unfortunately, this is where I get myself into trouble.  Something is just beyond my reach.  I am certain I can stand long enough to make things right.  And I can.  But come talk to me later and ask me if I would still have made that choice.  So I learn. 

I learn patience.  Acceptance.  New things to learn.  New people to meet.  New ways to meet people.  New ideas to explore.  Taking up old loves that I somehow lost the time to do because I was always too busy.  Behind every burden there is a blessing waiting to burst forth.  It is my responsibility to go look for that blessing.

What does the future hold?  I have no idea.  Someone pointed to my wheelchair over the weekend, and meant it kindly when they said they hated it, hated seeing me in it, and they were praying against it.  God, show me more of Your strength in my weakness until it is all you and there is nothing left of me.  I used to be bothered by such comments.  Now I pray for the other person.  God is showing me immeasurable things:  about myself, about what really matters, about eternal things rather than focusing on the things that I think I have to have right now.

So in my mind, I soar like an eagle.  I may not on my legs or in my chair.  But He is taking me to higher places than I would ever go without these experiences.  I am soaring.  It is all a matter of your perspective of soaring.

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